And Chasing Hospitals & Medical Places Because of Their Negligence...  Now Just Feels Like It’s Becoming A Full-Time Job…

... They seem to think ACCOUNTABILITY is something "other people do"... 

...  Now Just Feels Like It’s Becoming A Full-Time Job…

I am having MORE THAN ENOUGH of chasing after Gods-Damned Medical Places because of SODDING INCOMPETENCE...(!) ... It's Just Not OK for them to Run Roughshod All Over You... Then expect you to just Take It, I Guess -- because they do NOTHING to help you.

There is Nothing But Incompetence that's Either Bordering On or IS Negligence with the Hospital, with GP Surgery, with District Nurses.

Ignored Sepsis, a UTI in Post-Operative Suprapubic Catheter, and a HUGE Problem and Debacle with NHS 111. All in the pastTHREE MONTHS of HELL.

I am a Traumatised Autistic Person, and Exhausted Beyond Measure; overwhelmed with Fatigue.

Suffering with Fibromyalgia, Fibro-Flareup & Brain Fog, with Long COVID, Chronic Illnesses & Chronic Pain. BUT ... STILL having to DEAL With the LONG REACHING Consequences of what they have done or not done. 

I am -- Quite Frankly... Utterly DONE IN By It All... I am WRECKED -- Physically, Cognitively, Emotionally.... Just Absolutely FREAKING DONE...
Honestly, at the Basic Level, It's A FARCE. All Of It. Unfortunately, it's one that seems to HAVE to play out Over & Over & Over Again... Why does it even NEED to BE That Way?

I am TIRED... Traumatised... IN AUTISTIC BURNOUT... Struggling with the Very REAL Effects of Long COVID that seems to be getting Longer and Longer... I Am A Step, A Breath, Away from a Gods-Damned Full Nervous Breakdown (again)... I  have NO Way of DEALING with These Things In ANY Way properly... 
My Mother is TRYING... But SHE sure doesn't have it in her to keep doing these things, either! What More CAN She Do -- when she's in her mid-60s, still a Full-Time Working NURSE, and doing all this ON HER DAYS OFF for us?

It's absolutely Not OK that Medical Personnel can SCREW You Around, take no interest in you as a Person or even a Patient - not even managing to see you as a Medical Condition; Just Nothing But A Nuisance...(!!) 
That's why I've been trying to write the letters -- to try and Hold Them to Some Account. They ALL DEFINITELY need to learn the meanings of Responsibility AND Accountability.
​It's Outrageously DEPLORABLE that they not only think they can get away with these things -- it's that then CAN and they DO.

That Hospitals Decide How Ill or Well You Are Based On Whatever The Hell They Want You Be, NOT What You ARE.

The Urology Surgeons in A&E saying you can now have your Suprapubic Catheter Changed In The Community by the District Nurses -- then NEVER SENDING the Required Paperwork ANYWHERE...
NOT to the District Nurses, and Not Even To Their OWN DEPARTMENT'S Medical Notes! They Still sent out a letter to her for changing her Catheter at the 3-month mark, as if it had never happened! Damned Freaking CHEEK.
So when Lolli and myself DRAG ourselves Downstairs to the Lounge (as usual) for Lolli's first community Catheter Change... THERE IS NO PAPERWORK that says they CANNOT Legaly or Safely make the Change(!!). ALL of that EFFORT and PAIN for NOTHING.
AND... it caused ANOTHER WEEK of UTTER DISTRESSING STRESS for Me and Lolli and My Mother, with My Mother then CHASING All Around The Hospital to find out WHAT HAPPENED to the Gods'damned A&E Notes of the change she had on Boxing Day!

​
GPs Deciding Behind Your Back to COMPLETELY CHANGE the AGREED Treatment Plan that you went over CAREFULLY together and decided upon. Changing it and then NOT EVEN TELLING YOU.

You ONLY find out because to Assured Meds haven't turned up at the pharmacy.
You're ILL but you have to chase the surgery, and they come back and basically say, "Oh, The Doctor Changed Their Mind and thought it woiuld be better just to try XYZ Instead..."
ALL WITHOUT A WORD. Without a NEW Discussion, Without Taking Your Autonomy Into Account, Without Permission. Without Even Letting You Know. Outrageous & Absolutely NOT OK.
I have a VERY ILL Lolli [STILL] because the GP did Just This -- and what he DID was the Very Thing we told him NOT To Do(!!). He was deployed on an emergency house call by our normal GP to check on her, after the SEPSIS scare — and instead of giving the proper medication he assured & promised he would give a prescription for, he went back then did his OWN thing in his notes and gave her literally NOTHING to help! That was OVER A WEEK AGO -- Lolli is STILL Very ILL without the required medications, and we are STILL Fighting to get the ORIGINAL meds promised that SHOULD have been available The Very Next Day. OVER. A. WEEK. AGO.

District Nurses -- Like ALL Medical Personnel -- also go around thinking they know better because they're Nurses... Because they get paid to do a job. That they can Just Tell You What's What, and by some damned miracle it's suddenly True because They Said So?
Yeh, funnily enough... It. Doesn't. Quite. Happen. That. Way.
However — MAJOR KUDOS to ALL the District Nurses we see who understand that and listen to what we say & appreciate we do know what we are talking about.

Bottom Line? NO ONE is more of an EXPERT on whatever it is that's going on THAN THE PATIENT THEMSELVES. They get 24/7/365/FOREVER of whatever the hell is going on. That's more TRAINING than Medical Personnel will get on ANY specialty. They REALLY need to start LISTENING.
They REALLY Need To STOP DEMANDING Their Own Ideas On OUR Lives... Their "It's OK, I don't live this shit, so I can DICTATE to you what is Going To Happen.
Like it says... THEY Do NOT Live This Shit. We Do. They need to STOP Thinking They SHOULD have cold, unyielding Autonomy over OUR Miserably IMPOSSIBLE Existences.

I have already had a LIFETIME Of Trauma... I'm a Certified, Card-Carrying Pin-Wearing, Flag-Flying Member of the C-PTSD Club.

WHY Do I Always Seem To Have Even MORE TRAUMA HEAPED ONTO ME by the idiots that are MEDICAL PERSONNEL? As if they didn't do enough to me -- or enough Negligence towards me -- already as A CHILD. NOW they haunt me in Adulthood, as well??

Well... They're just going to have to find out what it looks like when someone who looks like a mouse turns into a Lion... A Dangerous Lion... One Who Demands Answers and their accountability lest they forever Regret It, Thereafter.

They have ONE CHANCE To Get It Right.