It seems that the NHS, Social Services, Government Depts... ALL seem to think THEY have THE Ultimate CONTROL Over You, as a Disabled Person. They ALL clearly believe THEY are ENTITLED to IMPOSE themselves on you, whenever THEY want to - and ENTIRELY Expect You To... Just. Go. With. It.
Life has only ever been good to me if I planned it out.
I am now in MEGA AGONY with PAIN from my Bladder from the fucking Balloon Ball.... VIBRATING with the amount of SHEER UTTER AGONY it is to actually ENDURE... It's BECOME A LOT LOT WORSE...
In an ideal world… being Disabled in some manner would mean extra understanding, support, respect, protection; Particularly within a Heathcare Setting….
I probably shouldn’t have given as much credence to the very people who have Ghosted Me, Patronised Me, and ONLY DID Anything To Actually HELP when I threatened to go to the Ombudsman…
Suprapubic Surgery happened, 19th September 2025. You'd think things would be BETTER. The LAST two times, things WERE better -- at least, THIS far in (a LOT MORE to be said about that much further ON from Surgery Date, but NEVER RIGHT AWAY...[!])
Chronic Illnesses, Disabilities… You have NO Idea how or what is no longer something you can take for granted anymore.
So. DWP sent ANOTHER text message… Kindly informing me that my “Latest” PIP re-assessment was “still with them” … Pending.
Spent nearly an HOUR trying to do meds between 12:20pm and 13:15, because I couldn't come round from my BlackOut/ Functional Seizure, no matter WHAT Mam or I did to try and Help That Along....
Is there ANY way I could possibly drill into my Narcissistic sister’s head that I really have much more pressing things to concern myself over than her self-involved ranting about she thinks I’ve “harassed her” or have had some kind of “behaviour issues” …?
Last Night.... I had to go to The BATHROOM.... And I ONLY BARELY Made It UP Onto The Toilet With The
I wonder how much Medical People truly care (like is it even 0.1%?) about what patients’ Lived Experiences actually DO to them… Physically, Cognitively, Emotionally…? How the Ramifications of their ghosting and gaslighting and postponing and time-wasting have Very Real Consequences to them, and the people around them?
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