Down  The Rabbit Hole
~ BLOG ~

I’ve been pushed from PILLAR TO POST by the Health & Social Care System This ENTIRE YEAR… Mainly by the NHS, though. Forced into demanded & non-negotiated pre-booked appointments, all over EVERYWHERE. We’ve even had to go to & pay for a hotel — including a 2nd room for my mother to drive & accompany — for a few days recently, to cover TWO in a hospital too far to make in a day and back (that one time went horribly wrong, and… NEVER again)… and at DIFFICULT Times.

They keep saying that “The NHS is broken”… But I find more than anything else, it’s The NHS People inside it, that seem to be more “broken” than the system.

I’m not just Spoons Bankrupt… I am Spoons Derelict. Left a Ruin of what once was. Made All The Worse by the past Six Months ALONE. The 12 years before that were horrendous, and Catastrophic. But in 2024 I was starting to actually Recuperate.

It seems that the NHS, Social Services, Government Depts... ALL seem to think THEY have THE Ultimate CONTROL Over You, as a Disabled Person. They ALL clearly believe THEY are ENTITLED to IMPOSE themselves on you, whenever THEY want to - and ENTIRELY Expect You To...  Just. Go. With. It.

Life has only ever been good to me if I planned it out.

In an ideal world… being Disabled in some manner would mean extra understanding, support, respect, protection; Particularly within a Heathcare Setting….

I probably shouldn’t have given as much credence to the very people who have Ghosted Me, Patronised Me, and ONLY DID Anything To Actually HELP when I threatened to go to the Ombudsman…

Chronic Illnesses, Disabilities… You have NO Idea how or what is no longer something you can take for granted anymore.

So. DWP sent ANOTHER text message… Kindly informing me that my “Latest” PIP re-assessment was “still with them” … Pending.