Down  The Rabbit Hole
~ BLOG ~



1 April 2024
24 March 2024

Blackout Mode & Aspirating

Looking back at all the entries in my Journey Journal for this month... I have spent it ALL in Severe BlackOuts. Day after day, constantly almost each entry details how I've been struggling under BlackOuts and unable to do anything, or even function in any way, at all...

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18 March 2024

PTSD of a Different Kind

Just came out of Major BlackOut ... Waiting for Someone to call from GP surgery - Supposedly the Dr is supposed to be calling me re the FND "Dossier" I [finally] sent to them, but I really have NO Interest in actually discussing it... I'm too exhausted, too overwhelmed and TOO GODS-DAMNED FREAKING DONE after the last few weeks and especially the past few days...

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17 March 2024

Aftermath

I'm no better but at least I don't seem to be any worse...? Spasms in legs went yesterday - now they're even more Useless than usual, and I can't do almost ANYTHING, because they're not back.

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12 March 2024
28 February 2024

Hard To Breathe & Everything HURTS

Another bad night with Nightmares that caused my jaw to clench SO hard my teeth are killing me - hasn't happened in a while, but seems it's back now, with it being the second or third time in a row now...

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EPIC FLAREUP

This is FIBRO HELL… Like I’ve been hit by a train, then a tank, and then by an Entire fucking PLANET……

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23 February 2024

ABYSMAL

Today is already completely kicking my ASS after yesterday… and to make it worse it is STILL 982mb THIS MORNING — FFS…!!!!! …. Could up some bit of lung-fluid and sticky-icky stuff. Came up easily enough with a bit of Ventolin… Thought it was because I might have aspirated meds, but it didn’t seem to be the case.

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27 December 2023

Rabbit Hole

I've long always known I Belong In The Dark. But I made a... B.A.D Decision... After my Ococcusses.

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22 December 2023

Blocked Catheter & Crappy YULE

So. Felt Super Nauseated this morning ... Made me check in the catheter bag cos it wasn't being good last night.. Annnndddd NOPE. Cos it's YULE DO-OVER DAY it QUITE NATURALLY went and GODS-DAMNED BLOCKED ITSELF....

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19 December 2023

Degradation...

I feel like I  Am Drowning... Suffocating... In Claustrophobic PANIC. I really do have Panic Attacks of fear, panic itself, shock, grief...

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