Relentless. Repeat. All Wrong
Having MAJOR MEGA BlackOuts Today... One not long a go from about 11:10pm to just minutes before 12am...
1 Apr 2024 23:21
Having MAJOR MEGA BlackOuts Today... One not long a go from about 11:10pm to just minutes before 12am...
24 Mar 2024 16:59
Looking back at all the entries in my Journey Journal for this month... I have spent it ALL in Severe BlackOuts. Day after day, constantly almost each entry details how I've been struggling under BlackOuts and unable to do anything, or even function in any way, at all...
18 Mar 2024 12:57
Just came out of Major BlackOut ... Waiting for Someone to call from GP surgery - Supposedly the Dr is supposed to be calling me re the FND "Dossier" I [finally] sent to them, but I really have NO Interest in actually discussing it... I'm too exhausted, too overwhelmed and TOO GODS-DAMNED FREAKING DONE after the last few weeks and especially the past few days...
17 Mar 2024 15:56
I'm no better but at least I don't seem to be any worse...? Spasms in legs went yesterday - now they're even more Useless than usual, and I can't do almost ANYTHING, because they're not back.
17 Mar 2024 14:00
DISTRICT NURSES FAILING TO ATTEND STANDING APPOINTMENT & FAIL TO ATTEND A CATHETER EMERGENCY TO SOMEONE WITH HYDROCEPHALUS
12 Mar 2024 14:43
Listening to Lindsey Stirling on YouTube... Calming, Comforting, Soul-Connecting, Soothing, Flying... Finding out more about her, too.
28 Feb 2024 15:00
Another bad night with Nightmares that caused my jaw to clench SO hard my teeth are killing me - hasn't happened in a while, but seems it's back now, with it being the second or third time in a row now...
28 Feb 2024 14:54
This is FIBRO HELL… Like I’ve been hit by a train, then a tank, and then by an Entire fucking PLANET……
23 Feb 2024 17:34
Today is already completely kicking my ASS after yesterday… and to make it worse it is STILL 982mb THIS MORNING — FFS…!!!!! …. Could up some bit of lung-fluid and sticky-icky stuff. Came up easily enough with a bit of Ventolin… Thought it was because I might have aspirated meds, but it didn’t seem to be the case.
27 Dec 2023 15:58
I've long always known I Belong In The Dark. But I made a... B.A.D Decision... After my Ococcusses.
22 Dec 2023 08:01
So. Felt Super Nauseated this morning ... Made me check in the catheter bag cos it wasn't being good last night.. Annnndddd NOPE. Cos it's YULE DO-OVER DAY it QUITE NATURALLY went and GODS-DAMNED BLOCKED ITSELF....
19 Dec 2023 15:30
I feel like I Am Drowning... Suffocating... In Claustrophobic PANIC. I really do have Panic Attacks of fear, panic itself, shock, grief...
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