NOW. I JUST CAN'T.

Published on 24 April 2025 at 23:32

I'm a Disabled Person who Can't Work.

The thing is -- I used to.

I am also Autistic, and to me, that definitely helped me in my job as an IT Consultant. Especially being a Self-Taught One. I was a Data Analyst and Databse Administrator, but my Main Skillset was a Data Quality Analyst, specialising in Databse Migration.

 

I was a yoga bunny, advanced horse rider, trained Classical Soprano, Singer-Songwriter & Accomplished Theatre Performer, loved Italian (vegetarian) cooking, and .


I was healthy, happy, and a GREAT job with good money. I doing REALLY great, and about to sign off on the biggest promotion of my career & life...

 

BUT THEN.

  • Then there was Pneumonia.
  • Then there was Functional Neurologicaldisorder aka FND
  • Then there was Fibromyalgia aka "Fibro"


... THEN THERE WAS THE TWO NHS TRUSTS THAT COULDN'T GIVE A DAMN AND LEFT ME TO ROT FOR 12 YEARS (and counting).

 

SO THEN.

  • - AGONISING **PAIN**. PARALYSIS. DYSPHAGIA. FUNCTIONAL SEIZURES (Major BlackOuts). Inability to MOVE & HARD TO BREATHE. FATIGUE LIKE NOTHING ELSE EVER. Bed-Bound-Room-Bound-House-Bound.
  • - Septicaemia & Sepsis. COVID. Autistic Burnout. TWO Nervous Breakdowns.
  • - 40 PAGES of Neurological Symptoms/DAMAGE (as written for FND diagnosis) ... Don't get me started on the Fibro ones.... 😵‍💫🤯😭😵‍💫😵😭😖🤯

 

If the [other] government HADN'T utterly DECIMATED the NHS, Especially NHS England, I probably wouldn't BE like this now.

IF the NHS neurologist I saw EIGHT YEARS AGO in NHS  Wales' Betsi Cadwaladr had looked further than the end of his nose and Diagnosed Me Properly -- instead of making up an Imaginary "Diagnosis" and leaving it at that(!!), I wouldn't have been here now.

 

I COULD have been saved from this. But I Wasn't.

 

Now I'm a hollow, empty shell who struggles to even get out of bed. To Breathe. To Eat. To Sleep. To.... Anything.

I used to DO things. Now... I Just CAN'T.

#fndwarrior #fibromyalgiawarrior #fibrowarrior

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