Getting Worse Before Not Getting ANY Better

I had surgery. My THIRD Suprapubic Catheter Procedure.

... Then they rushed me out faster than Premier Inn staff after 12pm.

They gave me NO aftercare information, advice, or Support. Nothing But A Printout — One that says to Take Paracetamol and call if there’s any problems.

Right… EXCEPT — I’m on a LIST of MAXED Out Major Painkillers, including Paracetamol… HOW Is that ANY Help? Also… Called When Needed Help. May as well have called Batman, for all the good it did. Should also have called The Ghostbusters for all the damned GHOSTING they’ve done on me before and since Surgery, too. […They could also send Slimer after them — that might make up for some of it, if they filmed that and sent it back to me. Or put it up on TikTok…]

— That kind of “aftercare” is NOT Even OK for a “NORMAL/ AVARAGE-JO-TYPE” Person…

Let Alone Someone Like Me.

And The RESULT…?: —

• Found out they did NOT use the Right Catheter (told then in ADVANCE… AND even BROUGHT ONE With Me)
• MASSIVE Problems Immediately from the one they shoved in, including EXTREME PAIN, Overwhelming Amount Of Bypassing, MASSIVE & DEBILITATING Spasms, EXTENSIVE LEVELS of Functional Seizures (BlackOuts: aka [P]NES) Since Coming Home, Due to EVERYTHING LISTED
• A BAD Post-Op Infection that’s SO FAR needed TWO rounds of STRONG Antibiotics
• I’ve been MORE ILL AFTER the Surgery than I even was BEFORE (and BOY is that saying something…)
• There has been a LOT of STRESS & DISTRESS trying to get information from the Urology Department — About these problems AND The fact I actually need it CHANGED at SIX weeks because EVERY other time, it’s fallen OUT — AND before, I’ve needed surgery to RE-DO it. I am SO NOT going through all this AGAIN when it’s 100% AVOIDABLE……?!]
• All the people on the phone at said Department said about the Infection & Catheter Change was “Go To A&E”…. I Can’t EVEN about THAT. …!!??! [A&E Can’t DO anything about that; PLUS WAIT 12-24 HOURS for that kind of “help” — especially as a Distressed Autistic person in Trauma & Pain?? A&E doesn’t NEED that and neither DO I?!!]
• There is NO ONE in the Urology Clinic to help; Consultant off on SIX WEEK HOLIDAY virtually straight after the Surgery…
• I’m Terrified of ending up with Sepsis — again… I got mine from a Urethral Catheter; not even one drilled into me; Septicaemia AND Sepsis… AND — It wasn’t even that long ago that Lolli [friend & companion] got DANGEROUSLY ILL after Suprapubic Surgery [same hospital] and ended up in A&E [and subsequently ghosted, avoided, belittled, patronised], where she was [EVENTUALLY] found to have Severe Dehydration & SEPSIS.

I’m left with RETURNING to those in
“Patient Complaints” section.

Yeeehhhppp… Those Idiots Investigating my original complaint of waiting 4 ½ Months for this Surgery, who decided My Crumbling World of Agony, Pain, Squalor of being left 100% Incontinent despite being VERY Disabled and unable to MOVE let alone BE Cleaned Up Properly, Functional Seizures, AND DEBILITATING Exhaustion — ALL leaving me unable to eat, drink or SLEEP for 18 WEEKS … was “Meh”. NO Case To Answer For. Meant Nothing.

… THOSE Whom I had to Threaten With The Ombudsman to GET ANYWHERE when I was forced to complain about how they “dealt” with my Complaint. The IRONY.

Seriously…. How and WHY are These People the ONLY ones I can turn to, to ask for HELP…??

NHS… Has Absolutely NO IDEA. Or at least… NHS Wales. Specifically, My Health Board. [… Well… And others; if the constant news about their failures is anything to go by….]

So, I’m stuck in LIMBO. ILL & Non Functioning. Mostly left UNCONSCIOUS by the Functional Seizures. TERRIFIED this is going to Come Out like the others, and it’ll Close Up AGAIN without my ever realising until it’s Too Late… Leading to the Last 4 ½ Months happening AGAIN… Again.

GREAT.

Yup.

JUST. FREAKING. GREAT.