Bed, Bathroom & Beyond The Screams....

Published on 11 August 2025 at 07:49

Last Night.... I had to go to The BATHROOM.... And I ONLY BARELY Made It UP Onto The Toilet With The

Monkey Bars Just Now.... BARELY.

The AGONY was INSANE -- AROUND THE PELVIS & Vertebrae/Spine,

cracking and grinding against each other HORRIBLY -- Always Goes RIGHT THROUGH ME...

 

That was about 1:04am.

 

Took Invizi Inco Pants + Maxi Inseroff, got Big Sneakers on, then HAULED myself UP - almost SCREAMING with PAIN and EFFORT.... Then Mam put New Pants + Insert on with & for me.

 

At first, the fucking bathroom... Wish could close both and just SLEEP... despite being plugged into the charger 😭 EVENTUALLY... It Did Turn On. Fortunately, because it did become REALY Fucking re atm but 

       ... NOW I'm fucking DONE and SOMEHOW I'll have to GET BACK at SOMEpoint, too..

 

FFS....!!!!!!!! 


It wasn't Until it was 3:20am that I Finally got enough PUFF
to leave the Bathroom now... JUST. ABOUT. .....

THIS IS FUCKING SICKHORRIBLE, NOW...

 

Fell off the toilet trying to get down... Again, AS USUAL, B NOW...

 

... This is going down a SERIOUSLY DARK PATH.

I REALLY don't know if I'm coming out of this even literally ALIVE.

Crawling back to my Room, barely conscious. Draagging legs behind as I kept trying to make it back, because the spasms that keeps them rigid enough to "crawl"  vanished from Sheer Mega Exhaustion/Fatigue


The Next Morning... It Didn't Finish There.

Had BAD incident with Lolli's Catheter bag...
The Night Bag came open & drained
all over part of the bed --
AND the damned floor...

Luckily Black Fabric inco from Invizi
caught a lot of it.

 

SO EXHAUSTED, I can barely open my eyes... Can't focus with ONE Open, let alone Two.... so only using Left eye right now, to see, because It'ss MARGINLY Better...

 

Eyes feel like SANDPAPER... lids MEGA HEAEVY... Things look like I've been drunk till passed out, then done twizzies for horurs after that...

 

Didn't sleep/BlackOut till 5:30am this morning, after returning from the bathroom.

 

... Wish could close both and just... SLEEP...

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